Good Grief?. Meaning Making Through an End Stage Renal Disease Illness Narrative

      Аннотация: Good Grief? is a patient voiced study about meaning reconstruction as part of the psychology of kidney transplant loss and hemodialysis. The work takes an innovative approach to health research, combining narrative, auto-ethnography and arts based dissemination. It considers the importance of the patient's lived expertise of experience in health-related knowledge translation and the evolution of agency through behavioural change. The narrative outcomes appear in Dr. Lewis's short film, Good Grief?, which provides a succinct example of patient voice in research. The inquiry re applies Neimeyer's Meaning Reconstruction Model of grief psychology to the experience of kidney transplant loss in End Stage Renal Disease.

Ключевые слова: narrative, Meaning reconstruction, ESRD, QOL, Arts Based Research, Grief, Health Related Knowledge Translation